The Pump or NOT the Pump

Kaitrynn has been back on her feeding tube pump for almost 2 weeks now. In the long term aspect of things it has help with weight gain. She is now up to 20lbs 3oz. Great news! There are downfalls with it though. The three letter word GAS GAS GAS ! Unpleasant GAS so, much that she is up 2 to 3 hours trying to pass it. She is fine during the day, but at night is when she is on the pump and when it comes. The point of the tube is to give her motility in her gut and put weight on. Yesterday I had finally had enough :~). I called the doctors in total tears pleading for relief of this pain that my baby is experiencing. She called PMCH and spoke with someone who said that ADIVAN works well with pain and it helps the little ones to relax and sleep. Nobody in Bountiful had the drug in liquid form. After calling around at 7:00 at night I found it at Walgreen's in Kaysville. I loaded up the kids and we were off. I have had Kait on soy milk the last few days too thinking that she may have an allergy to the lactose in the milk. We get to the pharmacy and drop the script off. Before I can get to my Moms house, Kait has pooped her pants and it has gotten all over her and her car seat. Brooklynn then informs me that she is smearing it all over her face and car seat. My mom lives 4 minutes from the pharmacy. Could my day get any worse I thought. Thanks to my Mom she helped me bathe her. We get home about 9:00 pm and give her the Adivan. This is a drug that is suppose to work with in a few minutes to about 45 minutes later. 2 1/2 hours later Kait finally falls asleep. She then woke up at 4:00 am with the awful gas. I took her off the pump to relieve the pain and discomfort. Today I received a new button to try. It is called the Mikey Button. You can hopefully vent this button when the gas is present. Wish me luck tonight that it works. As for giving her the Adivan tonight? My Doctor was out of the office today. the nurse said not to give it to her tonight. She can have worse adverse effects? Great I am calling Benedryl to the rescue for tonight? Hopefully this house will get some sleep tonight???????