Yesterday we celebrated my Moms 56th
Birthday. It was a great afternoon about 60
degrees. We had fun in the sun, but had to
make sure baby didn't get sunburned. Kaitrynn
update she has had a rough couple of weeks with
this darn gas. She has been on her feeding tube for
almost 3 months. This last week we have taken her
off totally. She seemed to do worse on it, than when
she was on. The Doctor said that we will go back to it
at some point, but mabey her gut needs a break at
night. She is drinking enough durning the day.
Yesterday was a great Milestone. She took 37 oz
of formula throughout the day. That was from
1:00 am to 11 :30 pm. This is the most she has
ever taken by moth up to this point in her little
life. What to do about the gas? The Dr's have
decieded that we are going to have a PH Probe done.
Then it also looks like we are heading for a NICIN (sp?).
This is where they will go in and remove her spleen from
her stomach and take her stomach and wrap it aroung her
asophagus. This will help A LOT with her reflux and the
gas. This will most likely be done the end of May first of June.
This is what the proffesionals are leaning towards. As a Mom
it is hard, very difficult to see your child suffer and go through
so much, but if it is going to make her better then it's worth it
as hard as it is on Mom. I am so grateful for my family and all
the help they have given me. I am grateful for all the prayers.
Keep them coming. I am grateful for this gospel and the peace it
gives me in my life. I love all of you have a great week. Pray that
Kaitrynn will gain the weight she needs. She is down from last weight
12lbs 10 oz. We need her to go up not down. I love ya all !!!!!!!!!








